Not Yet by Wayson Choy (2009)

A Memoir of Living and Almost Dying

From Amazon.ca: "Framed by Wayson Choy’s two brushes with death, Not Yet is an intimate and insightful study of one man’s reasons for living.

In 2001, Wayson Choy suffered a combined asthma-heart attack. As he lay in his hospital bed, slipping in and out of consciousness, his days punctuated by the beeps of the machines that were keeping him alive, Choy heard the voices of his ancestors warning him that without a wife, he would one day die alone. And yet through his ordeal Choy was never alone; men and women, young and old, from all cultures and ethnicities, stayed by Choy’s side until he was well. When his heart failed him a second time, four years later, it was the strength of his bonds with these people, forged through countless acts of kindness, that pulled Choy back to his life."

Wayson Choy is a beloved Canadian author. It's strange that he is not much read in the "States." Not Yet is a remarkable book that is one of the best illness narratives we have. It weaves cross-cultural themes into the narrative as well.

Publisher information: Not Yet

Lost Lullaby: Deborah Alecson 1995

By Deborah Golden Alecson
Published by University of California Press, 1995
ISBN 0520088700, 9780520088702 207 pages

From Google Books. "Lost Lullaby makes one think the unthinkable: how a loving parent can pray for the death of her child. It is Deborah Alecson's story of her daughter, Andrea, who was born after a full-term, uneventful pregnancy, weighing 7 pounds 11 ounces, perfectly formed and exquisitely featured. But an inexplicable accident at birth left her with massive and irreversible brain damage.
Told in a mother's voice, with a simplicity and directness that heighten the intensity of the drama that unfolds, Lost Lullaby reaffirms the human dimension of what is too often an abstract and purely theoretical discussion. During the two months that Andrea spent in the Neonatal ICU, Ms. Alecson spoke with lawyers, doctors, and ethicists in an effort to understand the legal, medical and ethical implications of her plight. She recounts those discussions and describes legal cases that have a direct bearing on her own situation. Her battle--both in coming to the agonizing decision to let her child die and in convincing the medical and legal establishments to respect that decision--will engender empathy for the plight of many families, and an awareness of the need to use medical technology with restraint. It is a must-read for everyone who cares about how we make life-and-death decisions on these new medical, legal, and moral frontiers."
This is an important book -- a must read. It is difficult and painful because it looks at issues that are usually glossed over. Can be obtained from abebooks.com DJE

The Body Broken by Lynne Greenberg (2009)

From Random House: "The Body Broken is a gorgeously told and intensely moving account of one woman’s extraordinary odyssey into a life of chronic pain–and of the unyielding resilience of the human spirit.

At age nineteen, Lynne Greenberg narrowly survived a devastating car crash. When her broken neck healed–or so everyone thought–her recovery was hailed as a medical miracle and she returned to normal life. Years later, she seemed to have it all: a loving husband, two wonderful children, a peaceful home, and a richly satisfying job as a tenured poetry professor. Then, one morning, this blissful façade shattered–the pain in her neck returned in the most vicious way. A life with physical agony ensued.

Greenberg realized that she had been living for years on borrowed time. As she and her family navigated an increasingly complicated web of doctors and specialists, Greenberg taught herself to fight her own battles–against a medical system ill-equipped to handle patients with chronic pain, and against the emotional pitfalls of a newly restricted life. Drawing on her family’s support, her own indomitable spirit, and an intense connection to the poetry she taught, Greenberg found the strength to return to a productive and satisfying–if irrevocably changed–life. This deeply personal saga takes us to the heart of a family’s struggle to survive a crisis, and shows us how, at the most profound levels, such an odyssey affects a patient’s marriage, the ability to parent, family, work, and friendships.

The Body Broken is a powerful, lyrical story of one woman’s remarkable determination and breathtaking courage, as she puts mind over matter in the struggle to reclaim her life.

This is truly an important book. It is in the tradition of Susanna Kaysen's "The Camera My Mother Gave Me." "Body Broken" is literate, at times maddening, but an important opportunity for care givers to learn from an articulate patient. DJE

The Bell Jar

From Amazon: Plath was an excellent poet but is known to many for this largely autobiographical novel. The Bell Jar tells the story of a gifted young woman's mental breakdown beginning during a summer internship as a junior editor at a magazine in New York City in the early 1950s. The real Plath committed suicide in 1963 and left behind this scathingly sad, honest and perfectly-written book, which remains one of the best-told tales of a woman's descent into insanity.

I just read this book. It is extraordinary, powerful and sad. The depiction of her hospital stay is not that different from Norah Gilbert's experiences in "Voluntary Madness" except that shock treatment is no longer in vogue. Elyn Saks' "The Center Can Not Hold" has similar passages. I found "The Bell Jar" somewhat painful to read. But, it is brilliant and insightful (to a degree). The etiology of her depression is not explored. Was it her father's untimely death or a near rape she experienced just before the breakdown? Shakespeare's words ring true:
The lunatic, the lover, and the poet
Are of imagination all compact.

Divided Minds: Twin Sisters and Their Journey Through Schizophrenia (2005)

From Publishers Weekly
This harrowing but arresting memoir—written in alternating voices by identical twins in their 50s reveals how devastating schizophrenia is to both the victim and those who love her. The condition, which afflicts Pamela (an award-winning poet), can be controlled with drugs and psychiatry, but never cured. When the twins were young, Pamela always outshone Carolyn. But in junior high, Pamela was beset by fears and began a lifelong pattern of cutting and burning herself. After the two entered Brown University, Pamela's decline into paranoia accelerated until she attempted suicide. During the ensuing years of Pamela's frequent breakdowns and hospitalizations, Carolyn became a psychiatrist, married and had two children. Empathetic and concerned, Carolyn nonetheless conveys her overwhelming frustration. and occasional alienation from her sister, when she is unable to help. Pamela's schizophrenia caused their father (a physician who edited a book on empathy) to sever his relationship with her. Remarkably descriptive, Pamela's account details how it feels to hear voices and to suspect evil in everyone. Though she struggles with her medications, Pamela remains a committed poet and is now reconciled with her father and close to her twin. 8 pages of b&w photos.
Copyright © Reed Business Information, a division of Reed Elsevier Inc. All rights reserved.

Voluntary Madness by Norah Vincent

My Year Lost and Found in the Loony Bin

You might call this: Slouching Towards Bedlam (Vincent's own words). It is a very interesting book that may not appeal to persons with psychiatric disease to whom drugs are the answer or to those who idolize psychiatrists. It is well-worth reading.

From Publishers Weekly: Vincent's first trip to a mental institution—to which the writing of Self-Made Man drove her—convinced her that further immersion would give her great material for a follow-up. The grand tour consists of voluntary commitments to a hospital mental ward, a small private facility and a boutique facility; but Vincent's efforts to make a big statement about the state of mental health treatment quickly give way to a more personal journey. An attempt to wean herself off Prozac, for example, adds a greater sense of urgency to her second research trip, while the therapists overseeing her final treatment lead her to a major emotional breakthrough. Meanwhile, her fellow patients are easily able to peg her as an emotional parasite, though this rarely stops them from interacting with her—and though their neediness sometimes frustrates her, she is less judgmental of them than of the doctors and nurses.

Under the Eye of the Clock

From Publisher's Weekly: Severely disabled by congenital cerebral palsy, Irish poet Nolan was 15 years old when he was acclaimed "a brilliantly gifted young writer" in the tradition of Yeats and Joyce. At 21, he wrote this memoir in the guise of an alter ego, Joseph Meehan. As he speaks of Joseph, "locked for years in the coffin of his body," paralyzed and mute, we are made aware of Nolan's herculean efforts and those of his family to release him from his isolation. A major breakthrough occurs when he is able to use a typewriter, then a word processor, working the keyboard with a stick affixed to his head. His physical triumphs and defeats are recorded with a striking absence of self-pity. In passages that are lyrically descriptive, there is abundant word coinage and expressive neologisms that capture Nolan's thoughts on sexuality and gratitude for the ambiance that supported him during his year at Trinity College. As Carey, his professor, states in the preface, Nolan's handicap is "a positive factor" rather than a modifying condition in his impressive achievement.

Christopher Nolan died at age 43 on February 20, 2009. NY Times Obit. He apparently asphixiated on food.