Showing posts with label Cerebral Palsy. Show all posts
Showing posts with label Cerebral Palsy. Show all posts

Sunday, November 14, 2010

A Life Beyond Reason


Chris Gabbard, an associate professor of English at the University of North Florida, has published an essay on the evolution of his perspectives regarding his severely handicapped son, August. Professor Gabbard has much to teach us about the depth of parental commitment and how caring for a special needs child can enhance the outlook of the caretaker as well.

Gabbard writes: “To admit how August has changed me is not to assert that what he has given me compensates for what he, my wife, my daughter, and I have lost on account of the poor decisions made by the hospital where he was born. There is no getting back what we have lost. Compensation is just a trope, and belief in compensation is as superstitious as belief in the medieval notion of correspondences. Besides, nothing can compensate for what all of us have had to give up.

“That is not to deny that August, along with my daughter and my wife, is the most amazing and wonderful thing that has ever happened to me, for he has allowed me an additional opportunity to profoundly love another human being.”

Professor Gabbard’s essay can be accessed in its entirety here. It will also appear in Papa, PhD: Essays on Fatherhood by Men in the Academy, published this month by Rutgers University Press.

Thursday, February 26, 2009

Under the Eye of the Clock

From Publisher's Weekly: Severely disabled by congenital cerebral palsy, Irish poet Nolan was 15 years old when he was acclaimed "a brilliantly gifted young writer" in the tradition of Yeats and Joyce. At 21, he wrote this memoir in the guise of an alter ego, Joseph Meehan. As he speaks of Joseph, "locked for years in the coffin of his body," paralyzed and mute, we are made aware of Nolan's herculean efforts and those of his family to release him from his isolation. A major breakthrough occurs when he is able to use a typewriter, then a word processor, working the keyboard with a stick affixed to his head. His physical triumphs and defeats are recorded with a striking absence of self-pity. In passages that are lyrically descriptive, there is abundant word coinage and expressive neologisms that capture Nolan's thoughts on sexuality and gratitude for the ambiance that supported him during his year at Trinity College. As Carey, his professor, states in the preface, Nolan's handicap is "a positive factor" rather than a modifying condition in his impressive achievement.

Christopher Nolan died at age 43 on February 20, 2009. NY Times Obit. He apparently asphixiated on food.