So Close: (2009)

Infertile and Addicted to Hope
by Tertia Loebenberg Albertyn 
From Amazon:  Meet, marry and make a baby: That's how it's supposed to go, right? What happens when you start trying for a family ... and trying, and trying some more? How far do you go to achieve your dream of having children? So Close is the heart wrenching, exhilarating, devastatingly funny story of Tertia Albertyn's battle with infertility. Tertia wanted a baby so badly she went through nine IVFs. Most people give up after the third. I don't think I am being brave at all. I am just too terrified NOT to try again. In her worst nightmare she could never have imagined that making a baby would take her four years, each treatment bringing her and her husband Marko closer and closer to creating their family. During Tertia's journey everything that can go wrong does go wrong. Until, finally, everything goes just right. Tertia is as hilarious as she is irrepressible, as approachable as she is knowledgeable. If you are struggling with infertility, have triumphed over infertility or have felt empathy with someone who is going through this experience, you will find a friend in Tertia.
DJE:  I haven't read this yet; however, it comes highly recommended.

Lost Lullaby: Deborah Alecson 1995

By Deborah Golden Alecson
Published by University of California Press, 1995
ISBN 0520088700, 9780520088702 207 pages

From Google Books. "Lost Lullaby makes one think the unthinkable: how a loving parent can pray for the death of her child. It is Deborah Alecson's story of her daughter, Andrea, who was born after a full-term, uneventful pregnancy, weighing 7 pounds 11 ounces, perfectly formed and exquisitely featured. But an inexplicable accident at birth left her with massive and irreversible brain damage.
Told in a mother's voice, with a simplicity and directness that heighten the intensity of the drama that unfolds, Lost Lullaby reaffirms the human dimension of what is too often an abstract and purely theoretical discussion. During the two months that Andrea spent in the Neonatal ICU, Ms. Alecson spoke with lawyers, doctors, and ethicists in an effort to understand the legal, medical and ethical implications of her plight. She recounts those discussions and describes legal cases that have a direct bearing on her own situation. Her battle--both in coming to the agonizing decision to let her child die and in convincing the medical and legal establishments to respect that decision--will engender empathy for the plight of many families, and an awareness of the need to use medical technology with restraint. It is a must-read for everyone who cares about how we make life-and-death decisions on these new medical, legal, and moral frontiers."
This is an important book -- a must read. It is difficult and painful because it looks at issues that are usually glossed over. Can be obtained from abebooks.com DJE