Look Up For Yes (1997)

by Julia Tavalaro and Richard Tyson

from Google Books:
One woman's passionate and articulate testament to the world that she is, indisputably, alive!

More than thirty years ago, Julia Tavalaro woke up from a coma to find herself almost completely paralyzed by two strokes that had also left her unable to speak. Suddenly, just thirty-two years old, she was a prisoner in her own body and a victim of the ignorant and cruel treatment of hospital workers who neither noticed nor cared that the "vegetable" they changed and fed every day was actually a bright and emotional woman. In this powerful memoir, painstakingly written with the help of poet Richard Tayson, Tavalaro details the hellish life she endured as a defenseless patient, angry and desperate to die, and the liberating actions of two therapists who took the time to realize that she was not incognitive but rather brimming with intelligence and life.

At last, Tavalaro managed to break through the isolation that imprisoned her. Slowly, methodically, she regained her ability to communicate -- aided by technological and therapeutic developments -- and began to compose poems that drew on the memories of her life before her stroke. Beautifully written and achingly heartrending, Look Up for Yes is a testament to a passionate and articulate woman who is ready and able to let the world know she is, indisputably, alive.

DJE: Similar to "The Butterfly and the Diving Bell" but darker and more powerful. This is the story of an ordinary woman who by luck was SAVED (after a fashion). Worth reading for neurologists, people who work in rehab, and anyone interested in the triumph of the individual over amazing odds.

Under the Eye of the Clock

From Publisher's Weekly: Severely disabled by congenital cerebral palsy, Irish poet Nolan was 15 years old when he was acclaimed "a brilliantly gifted young writer" in the tradition of Yeats and Joyce. At 21, he wrote this memoir in the guise of an alter ego, Joseph Meehan. As he speaks of Joseph, "locked for years in the coffin of his body," paralyzed and mute, we are made aware of Nolan's herculean efforts and those of his family to release him from his isolation. A major breakthrough occurs when he is able to use a typewriter, then a word processor, working the keyboard with a stick affixed to his head. His physical triumphs and defeats are recorded with a striking absence of self-pity. In passages that are lyrically descriptive, there is abundant word coinage and expressive neologisms that capture Nolan's thoughts on sexuality and gratitude for the ambiance that supported him during his year at Trinity College. As Carey, his professor, states in the preface, Nolan's handicap is "a positive factor" rather than a modifying condition in his impressive achievement.

Christopher Nolan died at age 43 on February 20, 2009. NY Times Obit. He apparently asphixiated on food.

The Diving Bell and the Butterfly by Jean-Dominique Bauby (1998)

This is already a classic.
In 1995, Jean-Dominique Bauby was the editor-in-chief of French Elle, the father of two young children, a 44-year-old man known and loved for his wit, his style, and his impassioned approach to life. By the end of the year he was also the victim of a rare kind of stroke to the brainstem. After 20 days in a coma, Bauby awoke into a body which had all but stopped working: only his left eye functioned, allowing him to see and, by blinking it, to make clear that his mind was unimpaired. Almost miraculously, he was soon able to express himself in the richest detail: dictating a word at a time, blinking to select each letter as the alphabet was recited to him slowly, over and over again. In the same way, he was able eventually to compose this extraordinary book.

By turns wistful, mischievous, angry, and witty, Bauby bears witness to his determination to live as fully in his mind as he had been able to do in his body. He explains the joy, and deep sadness, of seeing his children and of hearing his aged father's voice on the phone. In magical sequences, he imagines traveling to other places and times and of lying next to the woman he loves. Fed only intravenously, he imagines preparing and tasting the full flavor of delectable dishes. Again and again he returns to an "inexhaustible reservoir of sensations," keeping in touch with himself and the life around him.

Jean-Dominique Bauby died two days after the French publication of The Diving Bell and the Butterfly. The story also has been made in to a film. While good, the latter pales in comparison t0 the book.